THE MAGIC OF INFORMATION

THE MAGIC OF INFORMATION
Some people call information "the cheapest form of therapy": to develop youth-friendly HIV/AIDS information/resource services focused on the
needs of people living with HIV/AIDS is not too difficult. A simple information leaflet, and discussions in peer groups, for example, can make a lot
of difference.
What information is important? - People living with HIV/AIDS and those living or caring for them need up-to-date information on a range of
issues. For example, carers need information to help them understand the progression of HIV and to know what advice to give; people with HIV
need information to encourage them to seek early treatment for common illnesses, such as tuberculosis. They all need information about the
rights of people living with HIV/AIDS, about options for treatment and how to get them.
"To be informed is empowering. It has enabled me to manage living with the virus. I know how to take care of myself. I know my body, I understand it. I
know where to seek support if I need it. I know what kind of support I need. I feel courageous about asking questions. Even to protest. I know what the
choices are for me. And I am capable of making careful considerations before making any decisions. All this wouldn't have happened, or might have
taken an awfully long time to happen, if I weren't informed".
Suzana Murni, Echidna, Uganda, quoted in AIDS Action, Issue 43, 1999, Health link, London, UK.
COUNSELLING
Counselling can be extremely helpful to anyone in a difficult or stressful life situation. This includes anyone going for an HIV test, anyone
diagnosed HIV-positive, and caregivers looking after someone who is sick.
Training in counselling skills is very useful for anyone who provides care and support - from doctors and nurses to volunteers working on AIDS
telephone help-lines or home visiting programmes.
If your youth group is preparing to work with people who have HIV or AIDS, counselling training could be a good start.
Treat people living with HIV/AIDS with dignity and respect.
Ask to visit or to go out together; do not stay away.
Let them know that it is fine to talk about their feelings, or to show anger.
Listen.
If the person is sick, offer to shop/cook/clean; don't wait to be asked.
Don't allow them to become isolated. Tell them about any support groups or other services
that may be available in your community.